Parents hope son’s heartbreaking story raises awareness of rare disease few have ever heard of

3 months ago 20
Justin Vu, 5, developed what first appeared to be a stomach illness while visiting family in Oregon before doctors diagnosed him with Systemic Capillary Leak Syndrome, a rare disorder that has been documented in fewer than 500 people worldwide. (AP Photo)

A Colorado family is sharing the story of their 5-year-old son after what began as a stomachache during a summer vacation turned into a medical emergency caused by one of the rarest diseases ever documented. Justin Vu died just five days after being hospitalized, and his parents hope his story raises awareness of a condition many physicians never encounter during their careers, Fox 31 News reported.

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